Strategy and Governance
Download the : ILEP Strategy with revisions 2009 (1.33 MB*):
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Download the : Stratégie de l'ILEP en français avec amendements 2009 (306kb)
Download the : ILEP Constitution (52.8 KB): ILEP Bye-Laws (94 KB)
Download in French the: ILEP Constitution (53.1 KB): ILEP Bye-Laws (100 KB)
ILEP's Vision
is of a world where the rights of every person affected by leprosy to receive appropriate treatment and rehabilitation are fulfilled, and where all people affected by leprosy are able to participate as fully as they choose at every level of society.
As a Federation ILEP upholds the following values:
- Respect recognising the dignity, human rights and abilities of people affected by leprosy.
- Equity and inclusion ensuring that people affected by leprosy have access to the same services as others in their community.
- Courage of conviction prompting Members of ILEP to address the social and economic causes and consequences of leprosy.
- Justice so that everyone has equal opportunity to realise the full potential of their human rights irrespective of age, class, gender, race or religion.
- Partnership leading the Federation to forge alliances and promote the empowerment of people affected by leprosy.
- Honesty and transparency requiring the Federation to be accountable for the effectiveness of its work for people affected by leprosy.
The common mission
of ILEP Members is to work towards the long-term goal of a world without leprosy and its consequences through support for medical, scientific, social and humanitiarian activities including:
- the treatment, care and rehabilitation of persons affected by leprosy;
- the prevention of impairments and disabilities associated with leprosy; and
- the reduction of stigma and discrimination against people affected by leprosy and their families.
Achieving the common mission of ILEP Members
To help Members achieve their common mission, ILEP has set itself the following strategic goals for the period 2005-2010.
- ILEP will continue working together as a united Federation focused on leprosy
This will be achieved by providing strong leadership to the Federation and stimulating all forms of collaboration between its Members. ILEP will be responsive to the needs of its Members and ensure that appropriate services and tools are offered to them to support their leprosy work within the framework of integrated systems of health, education, social services and community based rehabilitation. - ILEP will promote and stimulate collaboration between all stakeholders involved in leprosy work
ILEP will further build upon its official collaborations with the World Health Organisation and will forge partnerships between all stakeholders in leprosy work at local and international level especially between associations of leprosy-affected persons, non-governmental organisations and governments of endemic countries. Whilst collaborating, ILEP will maintain its evidence-based and patient-centred holistic approach. - ILEP will strengthen field representation and develop an advocacy role for ILEP at the international level
At field level, especially in priority countries, ILEP will endeavour to strengthen the role of the ILEP Co-ordinators and their field representatives and to empower them to speak with authority on behalf of all Members. At international level, the executives of ILEP will promote the work of the Federation and of its Members so as to ensure that leprosy remains on the agenda of the health and development communities. - ILEP will make the ILEP co-ordination system responsive to the changing context of leprosy work in the field
ILEP will continue to review its co-ordination rules, mechanisms and tools in line with integrated set-ups in the field and new forms of collaboration with governments. ILEP will also endeavour to meet the co-ordination needs of its Members who support activities in the field of rehabilitation, care and advocacy for and with people affected by leprosy. - ILEP will provide authoritative advice on leprosy to ILEP Members and their field partners
The ILEP Technical Commission will make available to the Federation, publications and related resources essential for the maintenance of appropriate services for people affected by leprosy. It will seek to reach consensus advice with all relevant partners. The ILEP Technical Commission will regularly review teaching materials, technical advice and international training courses and make needs assessments in order to identify gaps. - ILEP will stimulate support to relevant scientific research including for the development of tools for diagnosis, treatment and prevention of disabilities and rehabilitation
The ILEP Technical Commission will continue to review the ILEP information system on scientific research including basic, applied and operational aspects, and identify research priorities. It will provide a regular update on evidence-based and best practice approaches in leprosy management, and promote increased capacity for research as well as advising on current research studies. - ILEP will continue to monitor leprosy activities supported by ILEP Members and attempt to redress areas of weakness
With the assitance of its Technical Commission, ILEP will continue to monitor the essential leprosy work supported by ILEP Members, including diagnosis and treatment, prevention of disability, physical rehabilitation, community based rehabilitation and referral systems, in order to help identify weaknesses and gaps. Advice and support will be given to address any weaknesses and unmet needs. - ILEP will build upon its long term goal of a world without leprosy by promoting broader support to developmental issues
Conscious of the links between leprosy and poverty, ILEP Members will seek to build upon their long-term goal of a world without leprosy by promoting broader support to the eight United Nations Millennium Development Goals, especially those concerning the fight against poverty-related diseases, gender equality and the eradication of extreme poverty and hunger.