Cardinal Léger Institute (Health)
In 1962, Cardinal Léger founded this Endeavour, originally called Fame Pereo, to help people with leprosy. Today, it is continuing the fight against leprosy, primarily in India and Haiti.
Center for Economic and Social Rights (CESR)
CESR, which was established in 1993, promotes the universal right of every human being to health and a healthy environment, education, food, housing, work and adequate standard of living.
Founded in 1944, the Damien-Dutton Society for Leprosy Aid, Inc, is dedicated to freeing the world of leprosy. It was named after Father Damien, the priest, who cared for people with leprosy on the island of Molokai, Hawaii, and Joseph Dutton, who assisted him. It presents the highest award for service to anti-leprosy work.
This UN website focuses on the rights and dignity of persons with disabilities and is the official website of the Secretariat for the Convention on the Rights of Persons with Disabilities.
Latest developments are reported in the UN enable newsletter:
Global Project on the History of Leprosy
The aim of this project, which was initiated by the International Leprosy Association and funded by the Nippon Foundation, is to assemble a database of archives on leprosy from around the world. http://www.leprosyhistory.org/
International Association for Integration,
Dignity and Economic Advancement (IDEA)
Established in 1994, IDEA is an international human rights and advocacy organization whose leadership and membership is primarily composed of persons affected by leprosy. Today there are over 30,000 members around the world. IDEA’s primary aim is to end the effects of discrimination, isolation and stigma people may feel, because they have, or have had, leprosy, and to restore their confidence, dignity and self-respect.
International Disability and Development Consortium (IDDC)
This is a consortium of international NGOs who support disability and development initiatives and who work in partnership with disabled persons, their organisations and local communities.
International Foundation of Dermatology
The objective of this Foundation is to provide better services for the disadvantaged in areas where skin diseases such as leprosy or sexually transmitted diseases are both common and poorly manged through lack of training resources.
International Leprosy Association (ILA)
Founded in 1931, this is a professional society for scientists, physicians and individuals and organisations in related areas working to understand and relieve the problems associated with leprosy. Its primary aim is to provide up-to-date, medically and scientifically accurate information about this disease. Between 1933 and 2005, it published findings, news and reviews in the International Journal of Leprosy and Other Mycobacterial Diseases. Approximately every five years it helps to organise International Leprosy Congresses.
Le Bulletin de l'Association des Léprologues
de Langue Française
This journal is published quarterly in French by the Association des Léprologues de Langue Française, the French professional organisation for those with an interest in leprosy.
Legs to Stand On
This is an innovative effort of international partners that combine forces to confront three of the most significant barriers to improving lower limb care in low-resource settings: lack of qualified health care workers and their inequitable distribution; the rapid rise in impairments and premature death from secondary complications of chronic diseases and limited economic resources.
Leprosy Mailing List (LML)
The Leprosy Mailing List was started to enable people to be able to share and divulge information remotely by e-mail about leprosy. The following link is to the archives and documents of the LML:
Leprosy Review is the leading medical journal specifically about leprosy, produced to contribute to a better understanding of this disease.
Making it Work (MIW)
The Making it Work initiative is a global multi-stakeholder initiative to promote effective implementation of the Convention on the Rights of Persons with Disabilities (CRPD), which came into force on 3rd May 2008.
Presentation on documenting and exchanging good practices.
National Hansen's Disease Programs,
Bureau of Primary Health Care, USA
The National Hansen’s Disease Programs (NHDP) is a division of the Bureau of Primary Health Care in the United States. It provides inpatient and outpatient care, and other services, at its clinic in Baton Rouge for people affected by Hansen’s Disease. The NHDP also co-ordinate outpatient care for patients in other states of the country and in Puerto Rico.
Neglected Tropical Diseases Journal
The Neglected Tropical Diseases Journal is the first open-access journal devoted to the world’s most neglected tropical diseases (NTDs). It publishes research by scientists in countries where the chronic poverty-promoting NTDs, such as leprosy and other diseases, are endemic.
Neglected Tropical Disease NGDO Network
This global forum for non-governmental development organisations (NGDOs) working to control onchocerciasis, lymphatic filariasis, schistosomiasis, soil transmitted helminthes and trachoma was formed in 2009. Its key objectives include improving advocacy for NTD disease control, providing a mechanism for co-ordination of NGDO activities at national and international levels and the sharing of technical updates and best practices.
Nepal Leprosy Trust
The Nepal Leprosy Trust is a UK-based Christian agency that provides services to people affected by leprosy in the Kingdom of Nepal.
Novartis Foundation for
This Foundation promotes sustainable development by bringing together different partners from all the actors in society, including the public sector, to develop joint contributions to solve health and poverty problems. It is sponsored by the pharmaceutical company Novartis and draws on its scientific knowledge to inform its decisions.
St Francis Leprosy Guild
St Francis Leprosy Guild's purpose is to help leprosy sufferers throughout the world. It is a registered charity raising funds mainly from donations and legacies, and distributing to leprosy centres in the third world.
Managed by Handicap International, this online international resource centre provides free access to resources on disability and inclusion. Primarily for academics and practitioners, the collection ranges from books and journals, to manuals, toolkits, posters, audiovisual materials and websites. Many materials are from developing countries and include published and unpublished literature.
Support for People with Hansen's Disease
Created as a support network in 2001, its website provides a forum through which people can share their experiences of this disease, including the challenges and particularly those caused by stigmatisation.
This website allows dermatologists, general practitioners, students in medicine and other health care workers, for example, to share opinions and expertise about interesting cases of leprosy, other tropical diseases and dermatology.
The Leprosy Mission
The Leprosy Mission is a development organisation that focuses specifically on leprosy and is part of the Leprosy Mission’s worldwide family.
The Nippon Foundation
The Nippon Foundation was established in 1962 by Ryoichi Sasakawa. Since 1975 it has been helping people affected by leprosy, channelling its efforts both through the World Health Organization and some ILEP Members.
UK Coalition against Neglected Tropical Diseases
This Coalition, of which ILEP is a Member, is a collaborative partnership between UK organisations actively engaged in the implementation, capacity building and research of neglected tropical disease control at scale.
The following is a portal to the websites of the United Nations, its funds and programmes and specialised agencies. It also includes links to key projects and initiatives, and to various joint programmes of the UN system: http://www.unsystem.org/
This UN website for practitioners brings together knowledge, practical experience and a wide range of resources on integrating a human rights-based approach into programme development.
Uniting to Combat NTDs: Ending the Neglect and Reaching 2020 Goals
This is the website for partners, including governments, pharmaceutical companies, the World Bank, the Bill & Melinda Gates Foundation and other global health organisations and non-governmental organisations that are working together to accelerate progress towards eliminating or controlling ten neglected tropical diseases by the end of 2020.
World Health Organization
WHO Global Leprosy Programme maintains information on leprosy at the following website:
The WHO in Geneva has several pages dedicated to leprosy, which can be found at: www.who.int./lep/
Information is also published occasionally in the Weekly Epidemiological Record. For issues visit: http://www.who.int/wer/
The WHO Disability and Rehabilitation Unit role is to improve the quality of life of, and promote and protect the rights and dignity of people with disabilities. For information visit: http://www.who.int/disabilities/en/
The WHO Newsletter on Disability and Rehabilitation
World Health Organization Regional Office for Africa: http://www.afro.who.int/leprosy/index.html
World Health Organization Regional Office for the Americas (Pan-American Health Organization):
Click on following link for access pages on Hansen disease (English):
In Portuguese: http://www.opas.org.br/
World Health Organization Regional Office for Eastern Mediterranean:
World Health Organization Regional Office for Europe: http://www.euro.who.int/healthtopics
World Health Organization Regional Office for South-East Asia:
Global Leprosy Programme Pages within SEARO website:
World Health Organization Regional Office for the Western Pacific: