ILEP’s New President Calls on Surrounding Governments to Make Contingency Plans for Non-Ebola Patients

Posted on 17/10/2014 by ILEP

The spread of Ebola is putting leprosy patients at risk of disability and even blindness according to Jan van Berkel, newly elected President of ILEP, the International Federation of Anti-Leprosy Associations. The strain on the health system in Liberia, Sierra Leone and Guinea is threatening the supplies of drugs that cure leprosy. Mr van Berkel called on surrounding governments to make contingency plans for non-Ebola patients, ensure there are stocks of drugs in country and arrangements to issue courses of treatment to patients who could not travel to the health centre.

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Wellesley Bailey Awards 2014 Presented in Delhi

Wellesley Bailey Awards 2014 Group Photo

Posted on 16/10/2014 by TLMI

The winners of the Wellesley Bailey Award for courage and achievement, Matiar Rahman and Shehu Fada, overcame rejection and discrimination in various forms.

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Healing, Inclusion, Dignity Inaugural Forum: Delhi, 29th – 30th September 2014

Posted on 13/08/2014 by ILEP

People personally affected by leprosy, together with experts and active practitioners are to engage with the vital concerns of those living with leprosy, through sharing of experience, knowledge and a range of perspectives, at a Forum co-hosted by ILEP Member, The Leprosy Mission International and The Leprosy Mission Trust India. This exchange is expected to lead to a clear agenda for the future, not only for The Leprosy Mission, but also, it is hoped, for other partners and agencies who want to bring about positive change in the lives of some of the most marginalised people in the world.

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The Gift of Pain - 100th Anniversary of Birth of Doctor who Revolutionised Treatment of Leprosy

Posted on 17/07/2014 by ILEP

An old man is rescuing a yam that has fallen off a stick by thrusting his hand straight into the red hot coals of a charcoal brazier. Hand surgeon Dr Paul Brand, watching this scene at a leprosy hospital in New Guinea realised that people affected by the disease have no warning system alerting them to pain. That insight transformed the treatment of leprosy and today, 17th July 2014 we celebrate the 100th anniversary of his birth.

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The First Step towards Diagnosing Leprosy is to Suspect Leprosy

Posted on 01/07/2014 by ILEP

“The first step towards diagnosing leprosy is to think of the possibility of leprosy” wrote D L Leiker in the introductory paragraphs to the chapter on differential diagnosis in Leprosy, edited by Robert Hastings. In countries where leprosy is rare these days this is highly relevant, since leprosy presents with a broad range of symptoms that can be found in other conditions such as psoriasis, eczema, diabetic neuropathy or arthritis.

Categories: News and Notes, Technical information

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WHO’s Disability and Rehabilitation Team Calls for Case Studies and Personal Stories

Posted on 13/06/2014 by ILEP

Evidence-based case studies of good practice in health-related rehabilitation that help attain universal health coverage are required to illustrate the Guidelines on Health-Related Rehabilitation currently being developed by the World Health Organization and partners. Examples are needed that reflect the guiding principles of the Convention on the Rights of Persons with Disabilities and preferably be of people with disabilities and user groups which have been actively involved.

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Mme Chau: Mother of a Courageous Family

Posted on 01/06/2014 by Grégoire Detoeuf, FRF

Parents are vital to their children, although their contributions may not always be acknowledged. Global Day of Parents, 1st June 2014, provides an opportunity to pay tribute to them and their role in nurturing their offspring. To help mark this international day, Grégoire Detoeuf, Fondation Raoul Follereau’s Representative in Madagascar and Vietnam, shares the story of Mme Chau, a selfless, enterprising, devoted and loving mother.

Categories: News and Notes, Vietnam

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International Development Committee’s Report on Disability and Development

Posted on 23/04/2014 by ILEP

“The more visible disabled people are in development work, the easier it will be to reverse the damaging patterns of discrimination that have, for so long, left disabled people behind.” So concludes the summary of the International Development Committee’s Eleventh Report of Session 2013-14. ILEP welcomes this recognition by the UK Parliament. They have long advocated for equal participation of persons affected by disabilities in all areas of life, particularly those with disabilities as a result of leprosy, but also for those with disabilities due to other Neglected Tropical Diseases such as Lymphatic filariasis and Buruli ulcer.

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Uniting to Combat Neglected Tropical Diseases: A Conversation on Progress Webcast and Live Q&A, 2nd April 2014

Posted on 01/04/2014 by ILEP

This will be broadcast live from the Institut Pasteur in Paris from 18:00 – 19:30 Central European Time/12:00 – 13:30 Eastern Standard Time.

Categories: News and Notes, International Collaboration

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In Memory: Professor Michel Lechat

Posted on 26/03/2014 by Dr Etienne Declercq, DFB

Sadly the renowned leprologist Professor Michel Lechat passed away on 28th February 2014 aged 86. In his encomium Dr Etienne Declercq, Medical Advisor for ILEP Member Damien Foundation Belgium, writes of Professor Lechat’s life-long passion for leprosy, his remarkable achievements and his open-mindedness, capacity to view each problem in its larger context and his capacity to inspire those who worked with him.

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